Wow. What a crazy roller coaster we have been on.....
Today we went to meet with dh's doctor the blood specialist.....and he's ok!!!!!!!!
He does NOT have Polycythemia VERA,
But he does have Polycythemia which is a symptom of Hemachromotosis, which comes in two forms.....He has the lesser or 1/2 disease: Heterozygous. The DNA test showed that he only carries one of the genes, so he's ok. Now we do need to test myself to see if I carry the other one and then that could really affect our boys, so I'll be seeing a genetisis soon.
So what this means for dh, is that every 3 months, he'll get a blood test and see where his levels are at, and if he needs to give blood to lower the levels once in awhile then all is well. Because he doesn't carry the other gene this can never go to the Full or bad disease part of Hemachromotosis. :)
We do have to watch his iron intake, since he seems to hold alot of iron in his body, so no red meat more than one or twice a year and no breakfast cereals, no raw fish (so no sushi for him....though I think thats gross anyways! :)),. So yeah, that's about it....
oh, yeah, and the ultrasound just sound that the "spot" was a blood vessel and I guess his sister has a few of those in her liver too. It was only 1 cm. They'll check that again in 6 months, but otherwise....He's good!
Apparently someone in the system just put on his chart the Polycythemia VERA, which got us really freaked out in the first place when dh saw it at his CAT scan.
What a huge relief for us....after we left the doctors office, dh started to act normal again, laughing and goofing off like normal. It was good. :)
Thank you all for your prayers and thoughts and hugs.
Now I can get back to creating again.......and post happier things here on my blog. :) :)